Color Coded Health Data: Factors related to willingness to share health information in South Asians

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dc.contributor.advisorChowdhury, Tanvir T
dc.contributor.authorNaeem, Iffat
dc.contributor.committeememberQuan, Hude
dc.contributor.committeememberSaini, Vineet
dc.dateFall Convocation
dc.date.accessioned2022-03-14T22:27:47Z
dc.date.available2022-03-14T22:27:47Z
dc.date.issued2020-09-22
dc.description.abstractBackground: Canada is becoming an increasing multicultural society welcoming individuals of various ethnicities. Ethnicity has become an established modifier of health in Canada, where ethnocultural communities face health disparities for multiple health outcomes. To understand these health disparities further, a call for high quality health data for ethnocultural communities has been made. Since health information availability is controlled by the participant, it is important to understand the willingness to share health information by an ethnic population to increase data availability within ethnocultural communities. Objectives: The objectives of this study aimed to explore and synthesize factors associated with willingness to share health information via a rapid review of literature and qualitative interviews with (South Asian) SA participants, the largest ethnic group in Canada. Findings: Triangulating results from both the rapid review of literature and the qualitative interviews, revealed that factors associated with sharing health information operated at 3 different levels: 1) community level, 2) individual level, and 3) process level. These factors also operated through a lens that considered the cultural and sociodemographic aspect of ethnocultural communities. Conclusions: The results of this study reveal important factors associated with sharing health information for ethnocultural communities, and support the need for culturally sensitive and respectful engagement with the community, ethically sound research practices that make participants feel comfortable to share their information, and an easy and incentivised process to share their information feasibly. Future study should aim to understand and measure data-sharing partnerships between researchers and ethnocultural communities to maximize data availability for ethnic populations.
dc.identifier.citationNaeem, I. (2020). Color Coded Health Data: Factors related to willingness to share health information in South Asians (Master's thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/39633
dc.identifier.urihttp://hdl.handle.net/1880/114473
dc.language.isoenen
dc.language.isoEnglish
dc.publisher.facultyGraduate Studiesen
dc.publisher.facultyCumming School of Medicine
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en
dc.subjectHealth data
dc.subjecthealth research
dc.subjectethnicity
dc.subjecttrust
dc.subject.classificationHealth Sciences--General
dc.subject.classificationHealth Sciences--Epidemiology
dc.titleColor Coded Health Data: Factors related to willingness to share health information in South Asians
dc.typemaster thesis
thesis.degree.disciplineMedicine – Community Health Sciences
thesis.degree.grantorUniversity of Calgaryen
thesis.degree.grantorUniversity of Calgary
thesis.degree.nameMaster of Science (MSc)
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