Abstract
Advance care planning is the process of reflection and communication of one's preferences for future care. Technological and medical advances have made it possible for people to live longer. It is likely that many people will live with a disability. This study aimed to understand how people with physical and/or sensory disabilities perceive advance care planning. One-to-one interviews were conducted with eleven adults aged 40 - 74 years, who self-identified as having a physical and/or sensory disability. The study was designed, interviews were conducted, and data were analyzed using Charmaz’ grounded theory. Participants' two main concerns emerged: health care provider lack of awareness of disability and aging with disability. Participants adopted planning for present and future health or illness as the means to address barriers in health encounters. A theoretical approach grounded in Self-Determination Theory, Self-management, and the Collaborative Care in Chronic Illness Model was derived.
