Acceptability of automatic referrals to supportive and palliative care by patients living with advanced lung cancer: qualitative interviews and a co-design process

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dc.contributor.authorAhmed, Sadia
dc.contributor.authorSimon, Jessica
dc.contributor.authorBiondo, Patricia
dc.contributor.authorSlobogian, Vanessa
dc.contributor.authorShirt, Lisa
dc.contributor.authorKing, Seema
dc.contributor.authorPaolucci, Alessandra
dc.contributor.authorPabani, Aliyah
dc.contributor.authorHao, Desiree
dc.contributor.authorBossio, Emi
dc.contributor.authorCross, Ralph
dc.contributor.authorMonds, Tim
dc.contributor.authorNieuwenhuis, Jane
dc.contributor.authorSinnarajah, Aynharan
dc.date.accessioned2024-04-07T00:06:18Z
dc.date.available2024-04-07T00:06:18Z
dc.date.issued2024-04-02
dc.date.updated2024-04-07T00:06:18Z
dc.description.abstractAbstract Purpose Timely access to supportive and palliative care (PC) remains a challenge. A proposed solution is to trigger an automatic referral process to PC by pre-determined clinical criteria. This study sought to co-design with patients and providers an automatic PC referral process for patients newly diagnosed with stage IV lung cancer. Methods In Step 1 of this work, nine one on one phone interviews were conducted with advanced lung cancer patients on their perspectives on the acceptability of phone contact by a specialist PC provider triggered by an automatic referral process. Interviews were thematically analysed. Step 2: Patient advisors, healthcare providers (oncologists, nurses from oncology and PC, clinical social worker, psychologist), and researchers were invited to join a working group to provide input on the development and implementation of the automatic referral process. The group met biweekly (virtually) over the course of six months. Results From interviews, the concept of an automatic referral process was perceived to be acceptable and beneficial for patients. Participants emphasized the need for timely support, access to peer and community resources. Using these findings, the co-design working group identified eligibility criteria for identifying newly diagnosed stage IV lung cancer patients using the cancer centre electronic health record, co-developed a telephone script for specialist PC providers, handouts on supportive care, and interview and survey guides for evaluating the implemented automatic process. Conclusion A co-design process ensures stakeholders are involved in program development and implementation from the very beginning, to make outputs relevant and acceptable for stage IV lung cancer patients.
dc.identifier.citationResearch Involvement and Engagement. 2024 Apr 02;10(1):36
dc.identifier.urihttps://doi.org/10.1186/s40900-024-00568-0
dc.identifier.urihttps://hdl.handle.net/1880/118391
dc.identifier.urihttps://doi.org/10.11575/PRISM/43233
dc.language.rfc3066en
dc.rights.holderThe Author(s)
dc.titleAcceptability of automatic referrals to supportive and palliative care by patients living with advanced lung cancer: qualitative interviews and a co-design process
dc.typeJournal Article
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