Godlovitch, GlenysNoseworthy, ThomasDong, Allen2013-04-292013-06-102013-04-292013Dong, A. (2013). Data Stewardship in Electronic Medical Records and the Policy Challenges for Research Programs: A Canadian Perspective (Master's thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca. doi:10.11575/PRISM/25521http://hdl.handle.net/11023/647Research access to personal health information presents a challenge to policy makers and researchers alike. It is usually framed as a conflict between data access for the benefit of society and the protection of privacy. This thesis examines the policy challenge by studying the data access policies of several organizations that are affiliated with academic institutions and provide research access to personal health information. By applying a policy ethics framework that combines the Veatch matrix and the Accountability for Reasonableness conditions of Daniels and Sabin the data access policies reveal an ethically justifiable resolution of the policy challenge. A case study conducted on one of the organizations yields a policy model that interviewees report, worked well in practice in the years 1996 to 2002. The policy options that emerged from the model could be adapted for use in any jurisdiction whose legal regime is similar to that of Canada’s provinces and territories.engUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.Public AdministrationPolicy EthicsSecondary Data UseElectronic Health Recordsmaster thesis10.11575/PRISM/25521