Currie, Gillian RMarshall, Deborah ACooper, Sarah M2023-05-112022-08-24Cooper, S. M. (2022). Evaluating key performance indicators of the process of care in juvenile idiopathic arthritis (Master thesis). University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca .http://hdl.handle.net/1880/116427ObjectiveTo determine whether and how often the required information to measure a set of previously developed key performance indicators (KPIs) was documented in data routinely collected in a Pediatric Rheumatology Clinic.MethodsA retrospective electronic chart review and administrative data analysis was conducted for a cohort of 140 patients with juvenile idiopathic arthritis (JIA) at a tertiary Pediatric Rheumatology Clinic between 2016-2020. Data was assessed as a binary variable indicating whether the required information was found. Documentation frequency for each KPI was assessed with counts and percentages of the number of times the required information was documented for each clinic visit. Compliance with the safety KPI definitions was assessed using administrative databases. ResultsAlthough data for each KPI were found in the cohort, documentation varied in frequency and consistency. Access to care and safety KPIs were documented more frequently than patient outcome KPIs. A joint assessment was documented at every visit for 95% of patients, 46% for an assessment of pain, and none for a physician’s global assessment of disease activity, an assessment of functional ability, or a composite disease activity measurement. Of the patients with documentation for waiting time for pediatric rheumatologist referral visit, 75% (n=24) had an eligible date documented. All of the patients who had a visit following their diagnosis date, had a visit within the first year of diagnosis and 78% of patients saw their rheumatologist at least once every year over their follow-up period. Tuberculosis screening was documented in 96% of the biologic patients. The first two years of eligible intervals documentation of laboratory monitoring for patients receiving methotrexate and leflunomide ranged from 76% to 90% after the first month. ConclusionAlthough the KPIs are feasible to measure in routinely collected data, there is an opportunity for improving the consistency of documentation. Having an active system of monitoring KPIs and tools to simplify measurement is a key step in the process toward improving patient outcomes. Streamlining the collection of KPI data can increase the likelihood of compliance. Next steps should involve replicating this study in various centres.EnglishJuvenile idiopathic arthritiskey performance indicatorsquality of careHealth Sciences--Generalmaster thesis