Browsing by Author "Marlett, Nancy J."
Now showing 1 - 17 of 17
Results Per Page
Sort Options
Item Open Access A phenomenological study of parents' experience with interagency case planning(2002) Philpott, David Fitzgerald; Marlett, Nancy J.Item Open Access ADD/ADHD: being a sibling(2000) Haber, Jill M.; Marlett, Nancy J.Item Embargo An Intervention aimed at improving the listening behavior of students with learning difficulties(1982) Parker, B. Ann (Barbara Ann), 1951-; Marlett, Nancy J.Item Open Access Burnout, job satisfaction and vocational rehabilitation work environments(1994) Wood, Sheila Jo-anne; Marlett, Nancy J.Item Open Access Communication issues and ALS: a collaborative exploration(2001) Horgan, Susannah L.; Marlett, Nancy J.Item Embargo Competency measures in the chronically mentally ill(1985) Scott, Donella R.; Marlett, Nancy J.Item Open Access Cystic fibrosis: Issues from the sibling perspective(1998) Simourd, Daryl W.; Marlett, Nancy J.Item Open Access Decision making by mentally handicapped adults employed in vocational programs(1987) Isaacs, Richard P.; Marlett, Nancy J.Item Open Access Descriptive analysis of ecological and performance variables in a group of multiply and profoundly handicapped children in congregate and home care(1982) Estay, Irene, 1949-; Marlett, Nancy J.Item Open Access Fundamental gross motor skill development as a structured preschool program for children with Down syndrome(1996) Kamps, Pauline H.; Emes, Claudia G.; Marlett, Nancy J.Item Open Access Inclusive education for students with severe disabilities: illuminating the issues(2011) Mooney, Laura Rae; Marlett, Nancy J.; Lashewicz, Bonnie M.This study is an exploration of the issues surrounding students with severe disabilities in inclusive education. An instrumental case study focuses on the educational experiences of one student as viewed by his parents, teachers and administrators. The purpose of this project is to contribute in-depth knowledge about the complexities involved in moving forward the goals of inclusion for all students amid inconsistent understandings and practices of inclusive education. Issues of challenging or protecting children, teacher comfort levels with disability, attitudes towards inclusion, conditional inclusion, bureaucracy of business, and the role of education assistants (EAs) are identified and exemplified. Freire's (1970) Critical Pedagogy assists in interpreting and discussing these issues in relation to their impact on the student and on education reform. Study findings suggest a need to address teacher discomfort with disability, negative attitudes towards inclusion, and the role of EAs when supporting students with severe disabilities in inclusive classrooms.Item Open Access Narratives of resilience in aging Soviet Jewish child survivors of the holocaust(2009) Shklarov, Svetlana; Marlett, Nancy J.Item Open Access Never say never: struggle and determination in the lives of young adults with fasd(2009) McGregor, Diane Lee; Marlett, Nancy J.This qualitative research explores the life experiences of young adults who have grown up with a disability such as Fetal Alcohol Spectrum Disorder. Using grounded theory methodology, this research investigated the stories of 7 young adults who face the challenges of living with FASO. In-depth interviews were conducted, transcribed and analyzed through a process of comparative analysis; common themes were identified and used to formulate theoretical concepts. Results are presented from a life course perspective, exploring experiences from childhood through to young adulthood. Themes represent an initial experience of life as a "normal kid" that changed abruptly in late childhood or early adolescence. Late adolescence is described as a period of significant turmoil and despair. A significant shift is observed in the life course, however, by the early twenties. Themes begin to reflect a growing awareness of self, including an emerging understanding of what it means to live with FASD. There is a noticeable shift in the way that young adults talk about themselves and their lives, reflecting themes of a growing maturity and future orientation. This research expands beyond predicted pathways of life-time struggle, presenting the actions taken by young adults as they move forward in their lives. Psychosocial influences that positively impact the life course are also presented. Results are discussed in the context of typical development, including recent theory on the tasks and accomplishments of emerging adulthood.Item Open Access Item Open Access Stories without endings: a study of illness and disability narratives in rural Laos(2011) Buchner, Denise; Marlett, Nancy J.Public health care utilization in rural Lao People's Democratic Republic (Lao PDR) is very low despite indicators that place the health status of Lao people amongst the worst in the world (CIA, 2006). A national health survey conducted in 2001 found that 53% of ill people in Lao PDR did not seek help for their health problem from a public health care facility. In rural areas, only 61.7% of villages had at least one doctor or nurse available to assist with health problems (Kanashiro, 2004). Between January and June 2007, ethnographic data were collected from Vientiane district in rural Lao PDR to examine the question: "When poor Lao villagers discover themselves to be ill or disabled, what types of treatments do they seek and why?" Data derive from participant observations, informal and formal interviews and discussion groups. Analysis of the data revealed that health seeking in rural Lao PDR is complex due to three interconnected factors. These factors are: the cost of accessing public health care and the complex processes surrounding choosing health care options and paying for them; cultural interpretations of illness and disability and the influence these have on health seeking; and complex bureaucratic processes that are bewildering to poor and rural people. Reasons for low utilization of public health care in rural Lao PDR are very complex and cannot be fully understood through any one of the discussed factors. Illness and disability narratives collected during research for this study are woven into the discussion presented in this thesis. Concluding remarks include key statements that present the main findings discovered from this study and also implications for future practice.Item Open Access The design and development of assistive devices by, for and with women with disabilities(1999) Egers, Julie Lynne; Marlett, Nancy J.Item Open Access A Value Driven, Co-designed Framework for Sustained Patient Engagement(2019-04-22) McCarron, Tamara L.; Marlett, Nancy J.; Noseworthy, Tom W.; Hassay, Derek N.; White, Deborah Elizabeth; Lorenzetti, Diane L.; Bryan, Stirling; McCaughey, DeirdrePatient involvement in various aspects of healthcare, from improving healthcare quality to promoting patient safety, has emerged as a critical priority, but understanding how best to engage patients is not well-understood. This knowledge gap results in frustrating barriers for decision-makers looking to draw transferable lessons to inform the design of patient engagement programs and processes. Coupled with challenges to the sustainability of health care and the need for innovative solutions, patient engagement has become central to improving both quality and delivery of services. This thesis is comprised of three independent studies that form an overarching program of research. The first study reports the results of a scoping review to understand how health systems are investing in building the capacity and ability of patients. In the second study, we build on the findings from the scoping review and a series of qualitative interviews to inform a provincial survey tool to understand the motivations of individuals who chose to give their time and talents to health organizations. In the third study, we co-designed a framework for patient engagement, grounded in market choice behaviour theory and informed by the literature, a province-wide survey and four provincial stakeholder workshops. While significant research exists that highlights the motivations of the public who choose to participate in decision-making, a limited number of studies have explored these concepts within healthcare. As the roles of patient and family members in the context of healthcare decision-making continue to evolve, the importance of effective and sustainable engagement programs will become increasingly important. A deeper knowledge of patient motivations will not only create meaningful engagement opportunities for patients but will also enable health organizations to gain from the experience of these individuals. While further research is needed to support the engagement of diverse groups of stakeholders, the findings from this study have developed an understanding of how patients are motivated to make engagement decisions. This knowledge will help focus patient engagement efforts, thereby improving the efficiency and cost effectiveness of these programs, ensuring their relative sustainability.