Browsing by Author "Santana, Maria-Jose"

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    An Assessment of the Effects of Iyengar Yoga Practice on the Health-Related Quality of Life of Patients with Chronic Respiratory Diseases: A Pilot Study
    (2013-01-01) Santana, Maria-Jose; S-Parrilla, Julia; Mirus, Judith; Loadman, Martha A; Lien, Dale C; Feeny, David
    OBJECTIVE: To assess the effects of an Iyengar yoga program (IYP) on patients with chronic respiratory diseases.METHODS: Patients attending lung transplant clinics in a tertiary institution were invited to participate in a two-phase, 12-week IYP that included 2 h biweekly classes. Doctors completed a formal physical and clinical assessment on candidates before enrollment. Patients with New York Association Class III or IV, or dyspnea grade IV were excluded. At baseline and at the end of 12-weeks, patients completed the Hospital Anxiety and Depression Scale (HADS), Chronic Respiratory Questionnaire (CRQ) and Health Utilities Index (HUI). Medication(s), 6 min walk test results and other clinical parameters were also recorded. Patients recorded the effects of the IYP on their daily living in journals. Nonparametric and qualitative methods were used to analyze the data.RESULTS: Twenty-five patients diagnosed with pulmonary arterial hypertension and chronic obstructive pulmonary disease (mean age 60 years) were invited to participate. At the end of the 12-week period, changes in HADS anxiety and CRQ fatigue scores were statistically significant (Pud_less_than0.05) and changes in HUI ambulation, pain, emotion and overall score were clinically important. The content of the journals revealed patients’ improvement in breathing capacity, mobility, energy, sleep and included positive feedback such as: “increased tidal volume with slowing expiration”, “I have an overall feeling of wellbeing” and “excellent amount of energy”.CONCLUSIONS: The findings suggest that yoga has significant potential to produce benefits. Potential benefits will be further explored in a national multisite study.
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    Prioritizing Patient Reported Outcome Measures (PROMs) to use in the clinical care of youth living with mental health concerns: a nominal group technique study
    (2024-02-21) Bajgain, Kalpana Thapa; Mendoza, Justino; Naqvi, Farwa; Aghajafari, Fariba; Tang, Karen; Zwicker, Jennifer; Santana, Maria-Jose
    Abstract Background In the past few decades, particularly in the mental health setting, there has been growing interest in using Patient Reported Outcome Measures (PROMs) to assess the efficacy of the treatments in healthcare systems. Despite recent initiatives for global harmonization, there remains a lack of consensus on which PROMs are best practice and appropriate. Engagement of the service users, such as patients and family members/caregivers, is vital at this stage to ensure the selected PROMs are feasible, relevant, and acceptable to them. This study aimed to prioritize PROMs by youth and family/caregiver based on feasibility, relevance, and overall importance to be used in the clinical care of youth living with anxiety and/or depression. Methods Ten validated and widely used PROMs were presented to the patients and family/caregivers. Nominal group techniques were employed to prioritize the PROMs based on feasibility, relevance, and overall importance. Results For patients and families/caregivers, the PROMs, Revised Child Anxiety and Depression Scale (RCAD 25), and The Young Person’s Core (YP-CORE) were the highest priorities. Both felt that RCAD 25 was comprehensive, short, easy, and quick to complete, whereas regarding YP-CORE, patients and family/caregivers thought it was also short and relevant. Due to some specific concerns, the Strength and Difficulties Questionnaire and Child Health Questionnaire were the lowest prioritized by patients and family/caregivers. Conclusion It is of utmost importance that patient’s and family/caregivers’ voices or opinions are considered while selecting and implementing PROMs in mental health settings. Our study provides practical recommendations around measures best suited to achieve this.