Understanding the Knowledge, Perception, and Experiences of Patients about Precision Medicine and Biobanking; A Qualitative Study

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dc.contributor.advisorPage, Stacey
dc.contributor.advisorSantana, Maria
dc.contributor.authorHaque, Mohammad
dc.contributor.committeememberRoach, Pamela
dc.contributor.committeememberDubyk, Alexander-Sandy
dc.contributor.committeememberSyme, Rachel
dc.date2022-06
dc.date.accessioned2022-02-17T22:46:23Z
dc.date.available2022-02-17T22:46:23Z
dc.date.issued2022-02
dc.description.abstractChronic Kidney Disease (CKD) patients’ knowledge, perception, and experiences surrounding Precision Medicine (PM) and biobanking were explored in this study. This study used a qualitative methodology. Data was collected by individual virtual interviews utilizing a semi-structured open-ended interview guide. Framework analysis was used on the resulting transcripts. Methodological rigor was achieved through credibility, reliability, and reflexivity. Four themes were identified concerning CKD patients’ knowledge, perception, and experiences of PM: benefits, concern, perceived barriers to implementing PM, and preferences on the informed consent model. Another four themes were identified regarding CKD patients’ knowledge, perception, and experiences of biobanking: benefits, concern about biobank research or donation of samples, factors that influence participation in biobank research, and ownership of donated samples. This unique study investigated the knowledge, perception, and experiences of CKD patients about PM and biobanking. The study results may help support programs and provisions that aim to overcome challenges that hinder a patient’s participation in PM and biobank research and consequently amplify patient engagement and awareness in PM and biobank research studies. In the end, the information gained from this study will add value to future PM and biobank research and clinical initiatives.en_US
dc.identifier.citationHaque, M. (2022). Understanding the knowledge, perception, and experiences of patients about precision medicine and biobanking; a qualitative study (Master's thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.en_US
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/39610
dc.identifier.urihttp://hdl.handle.net/1880/114421
dc.language.isoengen_US
dc.publisher.facultyCumming School of Medicineen_US
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en_US
dc.subjectPrecision Medicineen_US
dc.subjectBiobankingen_US
dc.subjectQualitative Researchen_US
dc.subjectKnowledgeen_US
dc.subjectPerceptionen_US
dc.subjectChronic Kidney Diseaseen_US
dc.subjectExperiencesen_US
dc.subjectPatient Engagementen_US
dc.subjectPatient-Oriented Researchen_US
dc.subject.classificationEducation--Healthen_US
dc.subject.classificationHealth Care Managementen_US
dc.titleUnderstanding the Knowledge, Perception, and Experiences of Patients about Precision Medicine and Biobanking; A Qualitative Studyen_US
dc.typemaster thesisen_US
thesis.degree.disciplineMedicine – Community Health Sciencesen_US
thesis.degree.grantorUniversity of Calgaryen_US
thesis.degree.nameMaster of Science (MSc)en_US
ucalgary.item.requestcopytrueen_US
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