A 'controversial' decision: multiple sclerosis patients, online medical knowledge and the ccsvi procedure

Simple item page
dc.contributor.advisorDucey, Ariel
dc.contributor.authorKelly, Jeanine Erin
dc.date.accessioned2017-12-18T22:30:30Z
dc.date.available2017-12-18T22:30:30Z
dc.date.issued2012
dc.descriptionBibliography: p. 154-172en
dc.descriptionIncludes copy of ethics approval. Original copy with original Partial Copyright Licence.en
dc.description.abstractThis thesis examines how people with multiple sclerosis (MS) used internet resources, including personal narratives on patient-based websites and medical information, to learn about a new and 'controversial' treatment based on the theory that MS is caused by chronic cerebrospinal venous insufficiency (CCSVI). In-depth asynchronous or telephone interviews were conducted with 49 people with MS. Findings are that people with MS have used internet resources to develop reflexive communities and sometimes challenge the authority and knowledge of medical practitioners. Also examined is how study participants view the use of the internet to make the theory of CCSVI indispensable. Finally, the thesis shows that while MS patients use internet resources to become informed, the decision to undergo the CCSVI procedure was subjective and based on how each participant viewed the progression of their disease and the chances that CCSVI could reconnect them with their sense of self.
dc.format.extentvii, 177 leaves ; 30 cm.en
dc.identifier.citationKelly, J. E. (2012). A 'controversial' decision: multiple sclerosis patients, online medical knowledge and the ccsvi procedure (Master's thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca. doi:10.11575/PRISM/4709en_US
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/4709
dc.identifier.urihttp://hdl.handle.net/1880/105710
dc.language.isoeng
dc.publisher.institutionUniversity of Calgaryen
dc.publisher.placeCalgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.
dc.titleA 'controversial' decision: multiple sclerosis patients, online medical knowledge and the ccsvi procedure
dc.typemaster thesis
thesis.degree.disciplineSociology
thesis.degree.grantorUniversity of Calgary
thesis.degree.nameMaster of Arts (MA)
ucalgary.item.requestcopytrue
ucalgary.thesis.accessionTheses Collection 58.002:Box 2088 627942960
ucalgary.thesis.notesUARCen
ucalgary.thesis.uarcreleaseyen
Files
Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
Name:
thesis_Kelly_2012.pdf
Size:
91.3 MB
Format:
Adobe Portable Document Format
Description:
Thesis
Download
Collections
Legacy Theses