A Value Driven, Co-designed Framework for Sustained Patient Engagement

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dc.contributor.advisorMarlett, Nancy J.
dc.contributor.advisorNoseworthy, Tom W.
dc.contributor.authorMcCarron, Tamara L.
dc.contributor.committeememberHassay, Derek N.
dc.contributor.committeememberWhite, Deborah Elizabeth
dc.contributor.committeememberLorenzetti, Diane L.
dc.contributor.committeememberBryan, Stirling
dc.contributor.committeememberMcCaughey, Deirdre
dc.date2019-06
dc.date.accessioned2019-04-29T21:10:44Z
dc.date.available2019-04-29T21:10:44Z
dc.date.issued2019-04-22
dc.description.abstractPatient involvement in various aspects of healthcare, from improving healthcare quality to promoting patient safety, has emerged as a critical priority, but understanding how best to engage patients is not well-understood. This knowledge gap results in frustrating barriers for decision-makers looking to draw transferable lessons to inform the design of patient engagement programs and processes. Coupled with challenges to the sustainability of health care and the need for innovative solutions, patient engagement has become central to improving both quality and delivery of services. This thesis is comprised of three independent studies that form an overarching program of research. The first study reports the results of a scoping review to understand how health systems are investing in building the capacity and ability of patients. In the second study, we build on the findings from the scoping review and a series of qualitative interviews to inform a provincial survey tool to understand the motivations of individuals who chose to give their time and talents to health organizations. In the third study, we co-designed a framework for patient engagement, grounded in market choice behaviour theory and informed by the literature, a province-wide survey and four provincial stakeholder workshops. While significant research exists that highlights the motivations of the public who choose to participate in decision-making, a limited number of studies have explored these concepts within healthcare. As the roles of patient and family members in the context of healthcare decision-making continue to evolve, the importance of effective and sustainable engagement programs will become increasingly important. A deeper knowledge of patient motivations will not only create meaningful engagement opportunities for patients but will also enable health organizations to gain from the experience of these individuals. While further research is needed to support the engagement of diverse groups of stakeholders, the findings from this study have developed an understanding of how patients are motivated to make engagement decisions. This knowledge will help focus patient engagement efforts, thereby improving the efficiency and cost effectiveness of these programs, ensuring their relative sustainability.en_US
dc.identifier.citationMcCarron, T. L. (2019). A Value Driven, Co-designed Framework for Sustained Patient Engagement (Doctoral thesis, University of Calgary, Calgary, Canada). Retrieved from https://prism.ucalgary.ca.en_US
dc.identifier.doihttp://dx.doi.org/10.11575/PRISM/36420
dc.identifier.urihttp://hdl.handle.net/1880/110238
dc.language.isoengen_US
dc.publisher.facultyCumming School of Medicineen_US
dc.publisher.institutionUniversity of Calgaryen
dc.rightsUniversity of Calgary graduate students retain copyright ownership and moral rights for their thesis. You may use this material in any way that is permitted by the Copyright Act or through licensing that has been assigned to the document. For uses that are not allowable under copyright legislation or licensing, you are required to seek permission.en_US
dc.subjectPatientsen_US
dc.subjectCapacity Buildingen_US
dc.subjectPatient Participationen_US
dc.subjectPatient-centreden_US
dc.subjectPatient Involvementen_US
dc.subjectDecision Makingen_US
dc.subjectMotivationen_US
dc.subjectCo-designen_US
dc.subject.classificationHealth Sciencesen_US
dc.titleA Value Driven, Co-designed Framework for Sustained Patient Engagementen_US
dc.typedoctoral thesisen_US
thesis.degree.disciplineMedicine – Community Health Sciencesen_US
thesis.degree.grantorUniversity of Calgaryen_US
thesis.degree.nameDoctor of Philosophy (PhD)en_US
ucalgary.item.requestcopytrue
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