PaCER - Patient and Community Engagement Research
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The Patient and Community Engagement Research (PaCER) program, as part of the O’Brien Institute for Public Health at the University of Calgary and in partnership with Alberta Health Services through the Strategic Clinical Networks™, is committed to transforming the role of patients in health care and health culture through engagement research.
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Browsing PaCER - Patient and Community Engagement Research by Title
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- ItemOpen AccessERAS From the Patient Perspective(2016-10-08) Gill, Marlyn; Zelinsky, Sandra; Gillis, Chelsia; Nguyen, Susan
- ItemOpen AccessExperiences of Heart Related Symptoms Among Younger Women(2016) Choudhury, Romita; Robertshaw, Sandra; Wheeler, Laura; Pearson, Winnie
- ItemOpen AccessI Promised We’d Get Help: The Parent’s Journey – Experiences of Parents and Family of Youth Visiting the Emergency Department with Mental Health Concerns(2018) Kockzur, Susanna; Halton, Esther; Pintson, Karina
- ItemOpen AccessI was Curious, I Wanted To Confirm What I Thought I Knew and I Wanted to Change(2014-12) Sim, Natalia
- ItemOpen AccessIssues Faced by First Nations, Metis and Inuit Rheumatoid Arthritis Patients in Accessing and Navigating the Health Care System(2015-11-20) Miller, Jean; Teare, Sylvia
- ItemOpen AccessLiving With Inflammatory Bowel Disease(2016-02) Fairs, Clair; Lengkeek, Shannon; Van Engelen, Amy; McKinney, Laurie
- ItemOpen AccessLosing Our Stories: Early Experiences of Individuals Facing Mental Illness(2015-03-09) Koczkur, Susanna; Halton, Esther; Sarsfield, Barb; Adams, Susan; Hellard, Oaitse
- ItemOpen AccessMeaningful Results from Meaningful Engagement: Enabling Patient and Family Participation in the AHS Seniors Health SCN(2015-04-05) Miller, Jean; Teare, Sylvia
- ItemOpen AccessOh! Canada: South East Asian Immigrant Experience of Osteoarthritis (OA) Surgery(2013-08) Kalia, Rashika; Khan, Rooh-Afza; Sheridan, Mary; Marlett, Nancy; Shklarov, Svetlana; Gill, Marlyn
- ItemOpen AccessOptimizing Centralized Intake for Rheumatoid Arthritis: a PaCER Study(2015-03-21) Miller, Jean; Teare, Sylvia
- ItemOpen AccessPatient and Family Experiences When Moving from the Intensive Care Unit (ICU) to a Hospital Ward(2015-01-30) Boulton, Debbie; Oswell, Donna; Oxland, Peter
- ItemOpen AccessPatient and Family Experiences: The First Days After Stroke(2016-02-04) Murphy, Brendan; Ryan, Laurel; Sharman, Donna
- ItemOpen AccessPatient Engagement in Breast Health Education Initiative(2017-10-31) Choudhury, Romita; Wheeler, Laura
- ItemOpen AccessPatient Engagement to Identify Priorities for Shared Decision-Making Tools in Cardiac Care(2016-02-29) Miller, Jean; Teare, Sylvia
- ItemOpen AccessPatient Experience of Waiting for Elective Surgery(2017-07-14) Gill, Marlyn; Nguyen, Susan; Sarsfield, Barb; Shklarov, Svetlana
- ItemOpen AccessPatient Perspectives and Expectations About Primary Care by Occasional Users, Seniors and Those With Complex and Chronic Care Needs(2017-03-04) Marlett, Nancy; Gill, Marlyn; Kozcur, Susanna; Choudhury, Romita
- ItemOpen AccessReport on the Analysis of The PaCER Patient Interviews from KOASK Phase 2(2019-01-16) Miller, Jean; Teare, Sylvia
- ItemOpen AccessReport on the PaCER Component of the AS MOC Study(2014-05-25) Miller, Jean; Teare, Sylvia
- ItemOpen AccessReport on the PaCER Component of the Knee Osteoarthritis and Self –Management Knowledge(2017-06-14) Miller, Jean; Teare, Sylvia
- ItemOpen AccessStillbirth, still life: A qualitative patient-led study on parents’ unsilenced stories of stillbirth(2017) Roland, Brenda; Wheatley, Venesa; Jones, Ashley; Gillis, ChelsiaObjective: Explore parents’ experiences of stillbirth using a patient-led qualitative approach. Methods: Parents who had experienced stillbirth in the previous 5 years were recruited through posters and snowball sampling, each participating in one or more data collection event. We conducted a co-design focus group to set the direction of our research, narrative interviews, and a reflect focus group to engage parents in finalizing the analysis and findings. Data were analysed iteratively using a participatory grounded theory approach. Results: Parents’ (n=11) experiences tended to be expressed in the form of two narratives: clinical and personal; the historical silent discourse permeated both narratives. The clinical experience, Abandoned in silence, was sub-divided into three categories: 1) Lead me through the decision with one sub-category: Recognize that I am having a birth and death experience; 2) I need specialized care now; and 3) I need specialized care later. The personal experience, Shrouded in silence, was sub-divided into three categories: 1) I survived the space between; 2) I am learning to forge a new path; and 3) My daughter’s name is Charlotte. Stillbirth is a story of death, but it is also a story of life. In stillbirth, parents require the space to experience both the birth and death elements of the story; yet, one or both elements are often silenced. Stillbirth, still Life was the core concept that emerged from parents’ stories of their stillborn babies. Conclusion: Parents’ narratives are driven by the need to honour their babies’ lives. They are learning to be unsilenced.