Patient-identified priorities for successful partnerships in patient-oriented research

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dc.contributor.authorSantana, Maria J.
dc.contributor.authorDuquette, D’Arcy
dc.contributor.authorFairie, Paul
dc.contributor.authorNielssen, Ingrid
dc.contributor.authorBele, Sumedh
dc.contributor.authorAhmed, Sadia
dc.contributor.authorBarbosa, Tiffany
dc.contributor.authorZelinsky, Sandra
dc.date.accessioned2022-09-11T00:03:21Z
dc.date.available2022-09-11T00:03:21Z
dc.date.issued2022-09-07
dc.date.updated2022-09-11T00:03:20Z
dc.description.abstractAbstract Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national strategy for patient-oriented research (SPOR) patient engagement framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR’s key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members.
dc.description.abstractPlain English summary Albertans4HealthResearch, supported by the Alberta Strategy for Patient-Oriented Research (AbSPORU) Patient Engagement Team, hosted a virtual round table discussion to develop a list of considerations for successful partnerships in patient-oriented research. The group, which consists of active patient partners across the Canadian province of Alberta and some research staff engaged in patient-oriented research, considered advice for academic researchers on how to best partner with patients and community members on health research projects. The group identified four main themes, aligned with the national Strategy for Patient-Oriented Research (SPOR) Patient Engagement Framework, highlighting important considerations for researchers from the patient perspective, providing practical ways to implement SPOR’s key principles: inclusiveness, support, mutual respect, and co-building. This commentary considers the process behind this engagement exercise and offers advice directly from active patient research partners on how to fulfill the operational patient engagement mandate. Academic research teams can use this guidance when considering how to work together with patient partners and community members.
dc.identifier.citationResearch Involvement and Engagement. 2022 Sep 07;8(1):49
dc.identifier.doihttps://doi.org/10.1186/s40900-022-00384-4
dc.identifier.urihttp://hdl.handle.net/1880/115201
dc.identifier.urihttps://doi.org/10.11575/PRISM/44340
dc.language.rfc3066en
dc.rights.holderThe Author(s)
dc.titlePatient-identified priorities for successful partnerships in patient-oriented research
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